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Cushing syndrome resources
Educational resources you can download
Understanding Cushing syndrome
Understand the basics of Cushing syndrome (hypercortisolism), how it affects your body, and the associated health consequences.
Could you have hypercortisolism?
Access a useful signs and symptoms checklist to determine whether Cushing syndrome screening may be appropriate for you.
Descargar la lista de síntomas en español
What if your doctor recommends a DST?
Understand how cortisol is regulated in your body and what you can expect when taking the dexamethasone suppression test (DST).
Descargar el resumen de la prueba en español
Cushing's disease and syndrome: The evolving story of hypercortisolism
In a podcast from Pituitary World News, experts discuss how the understanding of Cushing syndrome has expanded to include a range of symptoms, disease causes, and laboratory test result ranges.
Or listen here:
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Patient advocacy groups
Pituitary World News
Pituitary World News (PWN) is a pituitary disease–focused nonprofit educational organization connecting thought leaders to patients, creating access to critical expertise.
PWN is a network of highly informed professionals and individuals affected by pituitary disorders, with the goal of ensuring patients are diagnosed early and accurately.
The Conley Cushing’s Disease Fund (Kick Cushing’s)
The Conley Cushing’s Disease Fund, based in Hershey, Pennsylvania, is dedicated to serving patients with Cushing disease and their families. The organization underwrites opportunities for medical students, residents, and professionals focused on the early diagnosis of Cushing disease through grand rounds, CME classes, panel discussions, and lunch-and-learn sessions.
The Cushing’s Support & Research Foundation
The Cushing’s Support & Research Foundation (CSRF) is a nonprofit organization that provides information and support for patients with Cushing disease or Cushing syndrome and their families. A large database enables CSRF to connect patients with each other. CSRF provides high-quality medical information through its Medical Advisory Board.
Cushing’s Connection (Facebook Group)
Cushing’s Connection is committed to improving the lives of people living with Cushing syndrome (also called hypercortisolism). Through this community you can find information, resources, and support.
Pituitary Network Association
For over 30 years, the Pituitary Network Association has been dedicated to advancing the treatment and cure of pituitary disorders on a global scale. PNA collaborates with a consortium of leading pituitary experts to offer a wealth of resources and information pertaining to early detection, diagnosis, symptoms, and treatments for individuals affected by pituitary conditions.
Cushings.org
Cushings.org is a satellite site of the Pituitary Network Association; an international non-profit organization for patients with pituitary tumors and disorders and their families. Cushings.org was developed to offer more educational resources and information specifically geared for Cushing's patients.
Stories from people living with Cushing syndrome
“It was scary to know that I had a rare disease. … However, more than anything, I was so relieved to finally know that I wasn't crazy …”
Jenny grew frustrated after numerous doctors could not figure out what was causing her symptoms. Fed up and exhausted, she took matters into her own hands.
“My doctors kept chiding me to lose weight and exercise. I couldn't convince them that I was trying to eat healthy and exercise.”
Pat had always been fit and active—even devoting his career to athletics. Then, out of nowhere, his health and behavior began to change.
“The weight gain was very noticeable, and then I noticed facial hair. I started to feel less attractive. ...”
A flurry of unusual symptoms began to surface when Charsetta was in her early 20s. Little did she know, this was just the beginning of her journey with hypercortisolism.
“I tried taking blood pressure medication. I tried going off birth control. I even tried taking phentermine to counteract the weight gain. Nothing helped. …”
After years of believing she had a stubborn case of polycystic ovary syndrome (PCOS), Nicole finally found the answer to her symptoms that would change her life.